The Christianville Spirit
The Spirit that Fills Your Heart & Lifts You Up
September 25, 2013-TCS # 369
So, Let’s Start This Week’s Continuation of My Series, with yet another question. When was the Last Time that You wrote a Letter to a Family Member? By That, I mean, A Family Member can be Your Uncle, Your Cousin, Your Grandma, or even Your Aunt. It can be someone in your Immediate Family, or someone in your Extended Family. It is, believe it or not, Rare to write a letter to a Family Member unless They are Serving Overseas. Thank You for Your Service, By The Way! The Most Common Written Letter is a “Love Letter” but, a Family Letter? Well, Most People will tell you while leaning back, “Ehh, We have Email for That!” True. But, Again it is Rare and Getting Rarer. So, In My Case, Because I have 3 Families (Immediate, Smith, and PTLS Family, respectively) I’m going to write to My PTLS Family. So, without further a due, This is The Christianville Spirit Series, “Letters to Loved Ones!”. For the 2nd Installment of the “Letters to Loved Ones” Series, I’m going to write one to My dearest PTLS Family.
“Dear PTLS Family Members,
Hi! For Those who don’t know me, My Name is Christian Centeno, I am the son of My Mom, Julie Smith-Centeno. although I liked to be referred to as “Christian Smith-Centeno” but, I answer to both. I am now 26 Years Old and Yes, I have PTLS. I am actually proud to say that I have PTLS (or Potocki-Lupski Syndrome). Also, known as Duplication 17p11.2 and Yes, all that Medical Lingo Matters! I have had PTLS My Whole Life, although I didn’t really know until I was about 9 Years Old but, it didn’t really matter much to Me. It doesn’t matter to Me now. For Those that are wondering, “Why am so I Proud to have PTLS?” Because it makes me Unique. Not in a “I’m-Better-than-You” kind of Way but, in a more “I’m One of God’s Many Unique Creatures in This World.” So, People will always ask me, “How do You handle having this ‘disease’?” First of all, It is NOT a “Disease”! It is a Unique Chromosome Disorder, and, How do I deal with it? I have lived with PTLS, My Whole Life so, It became part of My Life. Anyway, The One Thing I wanted to tell you, besides Giving You an Education about It, is that Everything is Going to be Okay! Life through My Eyes, it is pretty Awesome! Excuse Me if I sound like My Mother for a minute, but Your Child is going to Talk either words or through their eyes; Your Child hears and understands Everything and I mean, Everything, Believe Me, I drive My Mom crazy when I hear her talking on the other side of The House and I have always understood what was being told to me; Your Child might want to have a Girlfriend (like I did) or Boyfriend; Depending on the Child’s choice, They could go to Homecoming or Prom (I went to Homecoming, but I didn’t go to Prom); and, Finally, as scary as it sounds, Will find someone and Will get Married (As I plan on doing). A little note about PTLSers having Children, There is a 50/50 Chance of their child having PTLS. As for Me, I don’t plan on having Children for that Reason, Crying or Children/Animals in Distress really bothers me, as well it would be Hard for me to take care of. So, Will they get to Go to College, Get a Job or Drive? Well, College will be up to the Child’s Discretion and Abilities. As for Me, maybe I’ll take a few Continuing Education Classes but, College isn’t high on My List. A Job is a Definite Yes! I have, had one before and I was really good at it. and, Driving...Well, I’ll put it this way, If we lived in a Small Town where Everyone knew who I was, then maybe I would Drive but, considering I live in a Big City, it might be Hard. Of Course, That is not to say that I never Drove before. Because My Brother had me drive around the Neighborhood and When I was younger, We had a Go Cart and I drove that a lot around the yard. So, Your Child will get there eventually, it just takes a lot of patience. So, If you are reading this and you have been here a while, You pretty much know all this. For Those that are New, Welcome to The Family! Remember though, that No Family is Perfect and Remember too, that Family should always come First! I believe that we are literally, a Family, we may not be Blood, but We Are Family!
I Love You All, PTLS Family!
Your PTLSer,
Christian Smith-Centeno”
So, as You can see, whether You are New or a Veteran, We welcome you with Open Arms, a Hug, and Lots of Encouragement. All in All, Family may be what you make of it but, Family is Important!
Thanks for Reading The Christianville Spirit. Remember the Importance of Family!
No comments:
Post a Comment