July 30, 2008

The Christianville Spirit:TCS Series; Elementary School


The Christianville Spirit
The Spirit that touches lives
TCS # 110-July 30, 2008
Ok, everyone. It’s time for the 4th installment of the series “Life is a fun Highway with PTLS”. This week I’m covering a very concerning topic with parents and families dealing with their kids with PTLS. And, that is School. Well, the first step to that to make sure you’re a good school district that good services for people with Special Needs. For example, I used to go to school in San Antonio, TX at Oak Grove Elementary but, the services weren’t that good so, we moved up to Plano, TX which is north of Dallas to Plano ISD which had pretty good services. Now, when it comes what to put your child on in papers, do not put them on a specific label like Autism, put them on “Other Health Impaired”. Here are some my experiences that might help you know on what’s to come. Elementary School for me was pretty good. But, there were a couple things that you might take notice of, first off for me was humming. Other Kids and Teachers got annoyed by my humming. But, to me what they heard was humming but, what I heard was singing songs. People would tell me to stop and I would; and, I would tell them that I think it’s singing through my ears and they would tell me that they thought it was humming and they would still tell me to stop. Another thing I had was what My Mom calls Stemming. Stemming is when you focus on something they like, like a map. In fact, one time there was a storyteller that showed up and read a story to us. And, their was a map behind me so, I would turn around and look at the map and start rocking and humming road noises that are common in Dallas. Afterwards, the teacher thought that I was being rude to the storyteller because I wasn’t watching them so; the teacher told My Mom that they thought that I wasn’t listening to the story and My Mom asked if I could tell her the story and I did. And, that was proof for My Mom and The Teacher. Now, who could blame me for something like that because for ANY Kid it’s hard to sit still for 8 Hours a day during a school week? Another thing was something that I got nervous about when I saw it. It was a large blow-up grey bubble that they called “The Planetarium” that they put near the library of the school I went to. After I got inside “The Planetarium” I was fine. Another thing I had was the fear of public speaking. One time I was in a play which before the play I got very nervous and sick to my stomach but, after my part I was fine. And, of course the final thing I had was that I have a thing about jelly-like substances like Gak, Silly Putty, Silly String, and stuff like that. So, one time in the 4th grade they had what they called an “Economic Fair” and the point is this was to invent something and sell it. Well, one group decided to make gak (which sort of like Silly Putty) to sell at this Economic Fair. And, that had my nervous for at least a week before until the day of which I was really nervous. It turned that I didn’t be with my group the day of the fair because of that. The things when your child knows something is coming up that there nervous about. They’ll really show that they are either the night before or the morning of the thing that going to happen. All in all, though Elementary School was good but, it just has a couple challenges. And, hear is a way to thing about it. What’s life without a couple challenges in it, after all that what makes us stronger. If you want a certain topic covered please email me or my mom.
Thanks for reading The Christianville Spirit. Have some good old “Christianville Spirit” in your life.

July 23, 2008

The Christianville Spirit: TCS Series; Eating


The Christianville Spirit
The Spirit that touches Lives
TCS# 109- July 23, 2008
Ok, everyone; it’s time for the 3rd installment of the series “Life is a fun highway with PTLS”. Today, I’m going to tell you what I eat then and now. So, without further a due hear is what I eat then and now. The first thing that you need to know is that a lot of PTLS Kids have issues with texture of foods. They don’t like foods or things that are too soft, hard, or slimy looking. When I was a baby, according to My Mom, I didn’t even eat Baby Food because of its texture. However, all I ate was Yogurt. As I got older, all I ate was Mac and Cheese and Yogurt. Now, before I get to how I eat the foods I eat today. Hear is how to tell when your kid has texture issues when the food that you want them to eat is front of them they start gagging or if they see a food that looks gross, they start having a nervous or “about to get sick” facial expression. Now you’re asking how I got to eat the foods I do today. If My Mom wanted me to try a new food she would put honey on it and then, I would eat it. As I got older, I started eating foods that looked good whether it was new or not. Today though, I eat Meat, Enchiladas, Fish, Crab, and more. Now-a-days I don’t eat Mac and Cheese as I used to. But, some of my Eating Preferences are often weird to others and even me. For example, I won’t eat French Fries but, however, I’ll eat them if they have cheese on them. So, the best way to get your child to try a new food is to put something they like on it like Honey, Cheese or other things that they like. All in all, mine and their eating habits will change as they get older.
If you would like me to cover a certain topic, please email me or My Mom.
Thanks for the reading The Christianville Spirit. Having a positive attitude can get you a lot and a negative attitude can get you nothing.

July 16, 2008

The Christianville Spirit: TCS Series; Hearing


The Christianville Spirit
The Spirit that touches lives
July 16, 2008- TCS # 108
After Writing last week’s edition of The Christianville Spirit about what I did then and now, I thought now that I should do a series about what I do that reflects My Special Needs and that’ll also help the people who find me as an inspiration to them and their children. So, without further ado; here is the 2nd installment to the series I call “Life is a fun highway with PTLS”. For this installment I’m going to tell you about my hearing, then and now. Now, first keep in mind that people with PTLS have very sensitive hearing; when I was kid, my hearing was very sensitive. Whenever I heard something loud I either cried or just covered my ears. Now, this may surprise you that when I was a kid I was even sensitive to the sound of the waves of the ocean. My Mom told me that one time she took me to the beach when I was a kid and when I sat on the beach hearing the sound of the ocean; I started crying because it was too loud for me. Also, when I was a kid I couldn’t even go to a sports event like a Hockey Game because the noise was too loud. Now-a-day however, my hearing has gone down a little bit but, I can stand more noises then I did before. Like now, I can go to a concert and be fine; I can go to the beach and stand the sound of ocean. So, all in all PTLS kids have very sensitive hearing when their kids and then, it’s fine but, still sensitive when they’re adults.
Thanks for Reading The Christianville Spirit. You Live and You Learn, That’s Life.

July 9, 2008

The Christianville Spirit: I do what I do


The Christianville Spirit
The Spirit that touches lives
July 9, 2008- TCS # 107
We have many different people who read The Christianville Spirit and there are some people who look up to me and My Newsletter to see what their Potocki-Lupski Syndrome child could possibly be like. Most of the time when they read my newsletter it’s mainly my point of view on life. But, in the things that I do is just to bear of it; this week’s edition of The Christianville Spirit is dedicated to them. Now, keep in mind that this special need runs from a Moderate to Severe Case. Me, I happen to be in a Moderate Case of it. So, here are a couple things I did before and things I do today. First Off, when I was little I used to pace back and forth on the grass when on one was watching, in my mind I was thinking of road noises, driving on the road, and seeing road signs. Today, I don’t do that anymore. Also, when I was little I hummed a song that I liked and although people were annoyed by it, I still did it. Funny enough, back when My Brother was little, my humming put him to sleep. However, as we got older though it started to annoy him. Today, I still hum but, I think it’s a little more of singing. To most people, when I hummed I thought it was actually a song I was singing, others thought it was humming. On thing I do that’s new today is whenever something bad happened or I don’t want to remember something I take a shower “Wash It Off” and one thing I do to do that is rub the scrubber against the bottom of my feet to get it completely off. All in all, I hope this has helped the people who look up to me because they deserve to be helped and understood.
Thanks for Reading The Christianville Spirit. Everyone is special in their own way