October 18, 2017

The Christianville Spirit: Find Out Who The Fettuccine You are


The Christianville Spirit
The Spirit that Makes You Wonder
October 18th, 2017-TCS # 566

Ciao, Hallo, and Hola, My Readers! Wow! A Triple Greeting! Those are from all Three of My Origins, Italian, German, and Puerto Rican. So, On to This Week’s Newsletter and I promise it’s a Good One! Ya Know, There is question that People have to ask in Their Lifetime, Who The Fettuccine Am I?! I don’t mean, who are you, meaning The Personality side of You, but Who are You in The Background? My Name is Christian, I am Christian, and I have Potocki-Lupski Syndrome, what else is there to know? Well, how much what Descent are You from? My Mom’s side is Italian (Grandma Honey’s Father was Italian) and German (Grandma Honey’s Mom, Great Grandma Mimi was German) and, Of Course, My Dad’s Side is Puerto Rican. But, In Life, You are curious to want to learn about What Percent of What are You? and, Where exactly are You from? Well, I found out the answers to that Question via My Mom, Asking My Grandma Honey, and Research. So, First, I will tell you the Percentages of My Background. I am 
40 % Puerto Rican (Made up of 80% Spanish White, 8% Black, and .4 % Native American)
 25 % Italian
 25 % German
10% Irish
So, It was if I did My Ancestry Report without Submitting anything, just doing Research between My Mom and I. Now, I will say that with Two Sides of a Family and Two Descents, There may or may not be a Little Bias. Often You are told what Decent to Identify with. For Example, My Dad and His Family always told me to Identify as Puerto Rican (or Puerto Ricaño). As I did at the PTLS Mini-Conference (Maybe I should call it “PTLS Conference on The Road or PTLS Conference to You!”) in Madrid, Where I said I was Part-Puerto Ricaño. Actually, There is where My Last Name (Like or not) Centeno, came from. After All of Our Research, I feel that I would Identify with both of Puerto Ricans or Italians because of My Love of Pasta and Italian Food in General. However, I can Thank the Germans for bringing us The Language of English. Yes, Folks! It is True, in case You did not know that English comes from German and Yes, even a little Dutch.
 Anyway, Continuing with The Research because Percentages on Graphs and Statistics of Things fascinates me. What got me more curious more than The Percentages was The Where of it. Too many times, When it comes to History of Things, We tend to focus on the Who and the When, but not too much on the Where, that is unless The Where in History is Important. Now, If You tie all that together, I feel that it makes The History more Exciting and More Interesting to want to learn about. If It is not Interesting to us, then We think it is Boring. We think it is Boring, when History is told in a less Interesting Way. I remember in School that it is was like that and Pulling back to Family, At One Time, I was more Interested in Playing with My Cousins than Listening to at least what I thought at the Time, was boring History Stories from My then-Great Grandma Mimi. I bet you that She tell us The Who, The What, The When, and The Where; All Best Parts of a Story. Honestly, I wish I would have appreciated it more than I do now. But, You live and Learn, and Sometimes, although You may think that History is boring and Does not relate to You, but Oh, It Does! 
Anyway, (Clearing Throat), Back to My Research Story Here! I did Find out the Where of My Family. My Dad’s Side is Easy because My Dad’s Dad lived in a Town called Manati which is a Few Hours West of San Juan. I believe that, The Spanish part of My Dad’s Family came from Toledo, Spain. My Brother found that out and I found out while I was in Spain. 
The Italian/German/Irish Side of The Family, My Mom’s Side, took a Little more research. The Italian Part is from My Great Grandma Baba, who married Great Grandma Mimi who was German. After that, came Grandma Honey, came My Mom, came Me. I was Curious about it because I knew that We were Northern Italian (and, Yes, I am told, It really matters whether You are Northern or Southern Italian) But, to say that You are “Northern Italian”, to me, Is Very Broad! Northern Italy can range anywhere from Rome (Roma) to Milano-Torino (Milan and Turn respectfully!). Italian Names for Cities! it sounds Better, Okay?! Anyway, We are from a Town (now a City) called Bergamo in The Italian Region of Lombardia. But, There is a Little of us that is Tuscan (or Toscana) from Pisa. I like to know the Nearest Major City when It comes to Geography and Where Places are. It is Northeast of The Major City of Milano. 
The German Side came from Great Grandma Mimi, who was German. Now, to say that You are German again is Very Broad as Germany is a Large Country. So, You could be Berlin, Hamburg, Munich, Frankfort, or any other City in between German. We are from a City called Stuttgart. The Nearest Major City on This side of Germany is Frankfurt. Although, Stuttgart can be considered a City of It’s Own. 

Of Course, The 10 Percent Irish segment of Me, comes from My Mom’s Dad, Popi who was a little bit of Irish. We are not what region of Irish, but because Ireland is a smaller and less broad Country, I would probably guess that We were from Dublin. Now, I have heard that You could get Ancestry Citizenship of a Country like Ireland, like I feel that with respect to Ireland, I don’t feel that Irish. Italian, is more of a Likely Ideal. When You have Family Names like Borella, Cravero, and Vitagliano, You can’t get any more Italian than That! All in all, If You are Curious about History or Your Own History, I think You ought to check it out because You may find Interesting Things!



Thanks for Reading The Christianville Spirit. Learn Where You Come from!

October 11, 2017

The Christianville Spirit: J-S Right Place, Right Time


The Christianville Spirit
The Spirit that Makes You Wonder
October 11th, 2017-TCS # 565

Cześć, My Readers! Wow! This is a New and Very Challenging-Appearing Greeting. It is actually means Hello in Polish! Now, Contrary to what looks hard to say, It is pronounced “Chest” like the Chest Part of Your Body or in other words, the part of your body that covers Your Heart. So, You learned something new! Way to go, My Readers! Anyway, on to This Week’s Newsletter! So, If You may recall in My Newsletter in 2016 that I have picture of Myself and A Woman who I mention at the End of My Newsletter. Refer to “The Untold Story of Mrs. Bachman and Mrs. James” (Newsletter 509). I mention her like This,
One Last Note here, I met the Vice President of The College that My Mom works at and told her about My Mom (Who is a Brilliant Teacher as well!) about How Awesome The College is too. I hope that Someday soon They will have Work Programs for People like Me at The College. I know The VP is working on it. So, A Shoutout to VP Jennifer, who I will admit looks more like Her Name should be Samantha, therefore referring to her as Jennifer-Samantha. Shout Out!” 
Well, Jennifer-Samantha, as I refer to Her as, is to say the least is a Very Successful and Busy Woman! That is a Very Good Thing! So, A Couple Weeks ago, She said that She wanted to go to Dinner with us because She is Very Interested about My Fascination with Geography/History/Politics as well as The PTLS Story as well, and All the Places I have been so far. So, She invited us to Dinner last night and in True Jennifer-Samantha Fashion, It happened to be “Volunteer Night” at a Local Restaurant, Texas Roadhouse. So, On top of The Greatness of Going to Dinner, We also helped The Community of McKinney because 20% of Your Bill was Donated to a Group called “Volunteer McKinney.” Well, as Destiny would have it, Grandma Honey-Style, We ran into The Owners of a Place called “Hug’s Cafe”. Yes, that “Hug’s Cafe”, The one who for the First Time in Our Area, Hires those with Special Needs in the Food Industry. Now, Okay, There are Places that Hire those with Special Needs including Grocery Stores and The Baseball Stadium that I once worked at,( It might have been Hot to stand Outside in The Summer but, It was a Fun Job!) But, Hiring those with Special Needs are far in between. It really was an Honor to meet them! What was Funny though, is that When they walked up to us, It was as if They had felt like They had seen us before and Perhaps They did! or it might have been The Right Place at The Right Time type of Destiny. After We talked to them, We sat down and Hung out with Jennifer-Samantha as People wanted to see her and talk to her. Jennifer-Samantha is of and is in High Demand, She is a Hot Commodity, Ya Know! Actually, A Couple that wanted to see her was going to sit somewhere else and Sweet J-S invited them to eat Dinner with us and They did. Doing It Grandma Honey-Style! More Friends! The More, The Merrier! Dani and Claude Day were Their Names. They were Interesting People to talk to, We talked about Fasinating Things and Yes, including Airplanes and Airports. It was Very Interesting, The People that I talked to or were Introduced to. I Thank Jennifer-Samantha in a Big Way because of The Way that She Introduced me with such Pride, “This is Christian, You got to Meet Him! Hear His Story!”. I felt loved and accepted by Everyone! I look forward to Spending Time with Them and Jennifer-Samantha herself, again. Finally, Speaking of The Right Place at The Right Time, I felt a bit frustrated about An Event earlier in the day and so was Jennifer-Samantha, but Our Time hanging out, brought Talking and Laughing.  It reminds me of a Few Weeks Ago when I was Frustrated about Workers taking down a Part of My Fence to cut out a Part of One Our Trees and as I walking, My Neighbor’s Child, “Dom” ran across The Street to Hug Me and I thought to myself, “You have No Idea how much that helped me!”. All in all, Sometimes, Destiny has a Funny Way of working itself through. Gratis Destino! (Thank You Destiny in Italian). Of All Words in Italian, That is My Favorite Phrase!


Thanks for Reading The Christianville Spirit. It is Good to feel loved and accepted.  

October 4, 2017

The Christianville Spirit: The Good Doctor


The Christianville Spirit
The Spirit that Makes You Wonder
October 4th, 2017-TCS # 564

Happy October, My Readers! Yes, Some People just love October. It means Autumn, Pumpkins, Pumpkin-spice Lattes, and Of Course, Halloween. Me? I only like it because It is My Brother’s Birth-Month and for Fall Foliage but, Halloween is in Not My Favorite Holiday. So, on to This Week’s Newsletter and Happy 11th Year of Writing to Me! So, This Week’s Newsletter is about something that has been Unconventional for The Longest Time. Don’t Worry, Folks! It is not going to get real like Last Week’s Newsletter. So, There is a New Medical Drama in TV and It is actually better than Grey’s Anatomy, Better than Grey’s Anatomy?! No Way! That is Crazy! It is actually from Writer of The Former-Medical Drama, House. This Show takes on The Medical World with a Huge Twist, The Doctor has Autism. Yes, Really, Autism. So, The Show is called The Good Doctor and contrary to belief, There are a Ton of what They call “Good Doctors” or Basically, Doctors that have Special Needs out there. As Long as They are Morally Right, Can Speak as Clearly as Possible, and Have a Passion to Save Lives, then You can become a Doctor! Anyway, This Show stars a Doctor named Dr. Shaun Murphy, who has Autism, but is Extremely Smart and Can Sense Things that Most People can not. My Mom and I started watching this show Two Weeks Ago, Once to give it a Trial Run to see if We like it or not, and Move on from There. Well, Long Story, Short, It opened My Mom’s Eyes up to the Mind of Someone with Autism, as well as Myself. 
Like, The First Thing, He can Imagine the Medical Anatomy of Particular Region of The Body, has it Pictured in His Head, and then can figure out What is Wrong with The Patient. It is something that I can do, only with Maps. I can Image a Part of The World while explaining about a Country or Explaining History of When something happened. 
The Next Thing, Opened My Eyes, with an Issue of Communication and (At Least for Me) The Distress of Someone in The Hospital, How do You explain what You are seeing to Another Doctor that needs to hear it? Well, First Off, The Distress did not bother him because His passion is to Save Lives! Anyway, The Way They animate this Show, They show on a Screen what He is Seeing as to What is Wrong with Said Patient, but trying to Explain to another Doctor along with The Hardness of Communication and The Doctor’s sometimes don’t listen because They believe that, “He doesn’t Know Anything! He has Autism!” and, that can’t be farther from The Truth. Sometimes, even though I have PTLS and I can Communicate well, I sometimes have trouble conveying certain things as well. Because so many things are going on in My Mind that I want to say, that My Mind gets ahead of Me. One Thing that I connected with was that He listened to Each Order that The Doctors (who did not understand him) said and Took it in Every Literal sense of The Word. Regardless, of Whether They were being Sarcastic or Just Plain Mean! Sometimes, Doctors can be that way. Not Our PTLS Doctors Though!
Another Thing that He did that amazed me was His Intuition! Whereas I have Intuition about People’s Emotions, Dr. Shaun Murphy had Intuition about People’s Health. For Example, There was a Little Girl with a Stomach Ache and Shaun thought it was Something other than a Stomach Ache. One of The Doctors mentioned about The Girl’s Parents arguing, and Shaun was told to send The Girl home because They thought that It was Only a Stomach Ache caused by Stress. Later, Dr. Shaun did one of Images in His Head and Figured out what was Truly Wrong with Her. He then went to The Girl’s House and try to help Her and The Arguing Parents did not believe him. Shaun used his Power of Obsession by knocking on The Door repeatedly, and Finally, got in to see that Shaun was Right about The Little Girl, Her Intestines were Twisted, making her Stomach Ache. I can relate to that because Us PTLSers have that Stubborn/Determined/Obsessive Streak. She went into Surgery and came out Okay. But, What amazed me was that He sensed it, He broke a Few Rules trying to care for Her, and He was Completely Right. Had Shaun not been there and so determined, She would have Died. Who says that Stubbornness and Obsessing never got you anywhere! In This Case, It actually has gotten Him results for what He thinks is going on. If a Mean Doctor says No, He will Obsess and Find a Way to get it Done! Just like Dr. Shaun has another Doctor to support and fight for Him because The other Doctors don’t want him there, I have Someone to Support and Fight for Me to get a Job that I can do that Others think I can’t. After Watching This, I noticed the Discrimination of People with Special Needs, it does not matter what Special Needs they have. All in all, Just like Dr. Shaun Murphy is Smart in The Medical World, I am Smart in the Geography World like People will not give me an Opportunity in the Job World! I just need an Opportunity!



Thanks for Reading The Christianville Spirit. See A Person Abilities, Not Disabilities. It Might save your Life! 

September 27, 2017

The Christianville Spirit: Weird Family; Explaining What I had and What My Mom did


The Christianville Spirit
The Spirit that Makes You Wonder
September 27th, 2017-TCS # 563

Happy Autumn, My Readers! That is the Old English Way of saying, Fall. Honestly, I like to refer to Fall as Autumn, It sounds much nicer! So, Gather ‘round, My Readers, Rather ‘round! It is Time for Another Untold Story of My Life! This One, I feel is going to a Funny One and I am going to Warn You Folks, It is Definitely Not Traditional! 
So, The other Day, My Mom and I talking and started talking about My Childhood. It led to The Topic of What My Mom did for a Living when I was a Kid. We had a Good Laugh and I said “Boy, We were a Weird Family!”. Funny How You realize just how Weird your Family is or was when You get older in Life.
So, As A Child, There are a Few Questions that You can be asked of when You talk to Your Friends or Your Friend’s Parents, “What does Your Mom and/or Dad do?”. Other than that You proudly say What Your Parents do. In a Child’s Mind, If Your Parents do something simple and easy to explain, well it is Easy to explain. Presently My Mom is a Professor at a Community College teaching Medical and Health Care Classes, President of The Potocki-Lupski Syndrome Foundation, and The Last one, Part-Time Lactation Consultant. Easy to Explain, at least Right Now that is. Now, try to Imagine, Trying to explain or at least, wanting to Explain what Special Needs You have or in other words, Why I have a Little Twang in My Voice that is a bit Nasally. I have Potocki-Lupski Syndrome (or PTLS), It is Autistic-like. We are like Autism, only Friendlier. Again, Easy to explain. Well, Let’s flash back to When I was a Child! (Sound of Time Machine Whooshing). I am in 4th or 5th Grade in the Late 90’s, Old enough to want to explain what I had and What My Mom did. At This Time in My Life, I knew that I had something called “A Duplication of Chromosome 17” because at the Time, Dr. Potocki and Dr. Lupski had not put a Name to It yet. Add to that, that not A lot of People had “What I had”, I was 4th in The World and 1st in The United States, A Blessing and a Curse at the Same Time. Again, This was at The Time. Now, My Mom, at the time, was a Nurse, but, did Lactation Consultation until She decided add on Massage later on a Couple Years Later to help with The Child Birth and Parenting Classes that She was Teaching.

Now, Lactation Consultation (We will just call it LC), to put it simply, is teaching Your Baby to basically feed from The Mother. The Mother’s Breast. Also known as Breastfeeding (I will be Honest, those Words make me Laugh still). Now, as A Child, I could not even pronounce LC, All I knew was The Alternate Name, “Breastfeeding” because that was, what it was, to put it simply, It was Breastfeeding. So, When that question came about, What does Your Mom do and Why do You speak Funny? I answered Very Proudly (even though I probably had No Idea what I was actually saying) “My Mom does Breastfeeding” and I talk Funny, again answering Proudly “I have a Duplication of Chromosome 17”. I got quite a Few Puzzled Looks when I said both of Those. Both of Which I usually said, Just ask My Mom. Yes, even though I had No Idea how to explain about What I had, I would still say “Do You want to do what Special Needs I have?” They would answer Yes, thinking it was something Easy like Autism or Down Syndrome. Nope, I had something that was more More Unique and Even though, I was Rare and 4th in The World having it, I was Extremely Proud! Even My Brother had a Hard Time explaining, What My Mom did and What I had. He was curious one time about What Color the Milk was that coming of These Moms, thinking It might be Red like Blood or maybe Blue or Green. My Mom did her job at The Hospital, Doctor’s Office, or At the Client’s House. So, We did not see her when She was doing her job with The Babies and the Moms. It made things confusing, This was not a “Take Your Kids to Work” Day kind of Work. But, We did go to Her Business Partner, Mrs. Ramirez’s House every now and then. We went to School with Mrs. Ramirez’s Kids. As for Explaining What I had, It was Hard to explain, let alone pronounce “a Duplication of Chromosome 17” and Know what I was saying. At The Time, My Brother, Michael, was Very Confused! All We knew was that I had something Very Unique! So , I look back on all of That and Laugh because it was not Easy at all. All in all, If You need to know how The Body works (even if You are not Breastfeeding, Pregnant, or Parenting), She can help you understand all the Medical Stuff, and She is The Expert on PTLS!

Thanks for Reading The Christianville Spirit. Embrace Your Weird Family!   


September 20, 2017

The Christianville Spirit: PTLS Adult Struggles-A Christianville Classic


The Christianville Spirit
The Spirit that Makes You Wonder
September 20th, 2017- TCS # 562

Buena-sera, My Readers! As I like to try different greetings, Buena-sera is Italian for “Good Day”. You Know, I have to say, Saying it and hearing it the way it is said sounds really nice. I am Excited about that saying because I am proud to announce that We now have a few PTLS Family Members from Italy! Shout Out to My New PTLS Family in Italia! Sounds a Perfect Excuse to see Italy! Okay, This Week’s Newsletter is going to be rather Personal and Real. You See, as I have mentioned many times before, Often I come across Some really Gold Newsletters that I have written in The Past in My Facebook “On This Day” Feed, but I realize that This One that I wrote a Few Years ago, I did not like The Structure of It, so I am going to Re-Structure This Newsletter as well as I should add it to My “Christianville Classics” List. As a Reminder, My Christianville Classics are Classic Newsletters that I feel, are The Highlights and The Truly Gold of My Newsletters. Always check to that List because I am always adding more Every Now and Then. As an Editor’s Note, at the Time of This Newsletter, I was not going through My current Laser Hair Removal Process. *As a Precaution, I will put a Rating on One of My Struggle Topics.
This Newsletter was written on September 17th of 2014 (Refer to Newsletter 417). It is The Struggles of a PTLS Adult. 

So, As PTLS Family Members (I have Acronym’d them as PFMs) always wonder about The Life of A Young Adult with PTLS and What do They struggle with. Parents of Young Kids with PTLS often forget that The PTLS Adults also need Support for Different Things like Living Situation, Jobs, Romantic Life, and My Personal Favorite (Not Really!), Independence! At Least, that is What I struggle with.  

Independence
So, I guess I will start with The Struggle with Independence because That often Frustrates me The Most. The Truth is, although I love My Mom and Love Living with My Mom, I will eventually want Independence. 
So, Let’s Start with What I can do. I can dress Myself, Feed Myself, Cook Meals (within Reason), Microwave Meals are the Best I work with if I am by Myself. I don’t work with The Stove if I am by Myself, If I do, I have to have Someone There. I could go to The Grocery Store to get things If I need to, only Problem is that, I don’t announce that I need something from The Grocery Store until It is almost Gone, so I need to Work on that, and I can Shave My Face (But, only Top half of My Face), because Shaving the bottom bothers me sensitivity wise, and The Motor Skills don’t help much either. So, Yes, I need Help with that, usually My Mom helps me with that. 
The Things that I can not do, I don’t Drive (that is okay with Me). Now, that is not to Say that I Can’t Drive because I have Driven a Car with My Brother in The Neighborhood and I have driven numerous Golf and Go Karts. But, Again, The Problem is that living in a Suburban City like Plano, I would be more of a Danger to The Other Drivers, as They would to Me. Add to that, that I am busy looking at all the Surroundings and My Reaction Time is Very Slow, so Someone could cut me off or Slam on Their Brakes and I wouldn’t be paying attention or I wouldn’t react as fast. I’ve always told Myself that, “If We lived in a Small Town where Everyone knows Me, then I would do better Driving.” In My Head (which is a Saying, I use ALOT!), People would know me well enough, that They would be like, “Oh, There’s Christian on The Road, be Careful!” Next Thing that I believe holds me back the most is The Shaving. Now, before You tell me that I should use a Good Razor, I have tried Every Razor that I could. I use an Electric Razor because in My Head, It seems easier to use than a Straight Razor. Believe Me, I tried a Straight Razor once (a Single one) when I was Younger and it got caught and it ripped My Skin off on My Chin. 


Jobs and/or Finding a Job
The Next Thing that is a Struggle with is Finding a Job that suits me. Meaning a Job that is not too Overwhelming, Has a Calm Environment, and has Good Structure. Let’s not forget to Mention, Something that Interests me. Now, I have seen Jobs that I have liked like Navteq, The Weather Channel, and Google. I would want to do the “Street View” side of Google. 
As Far as Jobs that I have done, The First Paid Job was The Frisco Roughriders (a Double-A League Baseball Team) as a “PlayBall Attendant”, meaning Someone who passes out Programs to The Community. I have to say, although, I had to stand in The Heat most of The Summer, It was actually an Enjoyable Job. 
I also did “Kid Sitting” one fall, All I had to do was Make sure that He did his Homework. I did well at that job because I am a Rule Follower. Unpaid Jobs, I did what I now refer to as “Parking Lot Duty”, back when I was in 10.5 Grade (a Repeat of 10th Grade) which I had to walk the Staff Parking Lot and jot down the License Plate if They were parked in The Wrong Place. That Job, I am Very Proud of because I got 100% Compliance from The Teachers at the High School I went to. While I was doing that, I also Delivered things to different Classrooms as well as Office Work in The School Office. 


Living Situation (with Mom, Roommate, or Soulmate)
So, The Next Thing that I want to move forward with is My Living Situation, Now at the Risk of Sounding Negative about this, It is not really a Struggle but, a Concern. Currently I live with My Mom here in Plano, but The Concern comes in when I want to be Independent. I have told Myself that I have always wanted to live near The Smith Family and My Mom wants us (meaning Myself, Michael, and My Mom) to be near Each Other. I, of course, want to make sure that My Mom lives nearby so that She can help me. By Nearby, I mean, Down The Street, Next Door Preferably, or at least in The Same City. 
By The Way, as Far as Living Independently, I would probably live with a Roommate if I am Single at The Time (Which I don’t believe I will be!) or I will live with My Significant Other (aka, My Future Soulmate). 


Romantic Life, Dating, and Married Life (PG-13 to R)
Speaking of Romantic Life, that would be something that I am watching for. I have a Feeling that She is Reading This, Secretly Admiring Me, even though I have never met her. Although, I think that I would have Control of it for The Most Part, I would meet her, Date Her, and then Eventually, Marry Her. I would Love My Future Soulmate with All My Heart! And, I am sure that She would too. Considering The Fact that I get Anxious about New Things and New Events, I would hope My Wedding goes off Anxiety-Free. Which is Normal for Everyone to get Anxious about it.
My Honeymoon will be Excellent, I have that all planned out to Possible Places to go! One Area that I am Really Concerned about is Having Sex with My Wife (This might be Personal, but It is Reality), due to having Texture Issues, I am not sure how I will respond when that time comes. Seeing and Touching Body Parts, and The Act of Sex may or may not go over so well. That Thought Alone makes me Very Anxious.
As Far as Married Life goes, Her and I would live together and Travel The World together! We would not have Children because They would be hard to take care of and It is a 50/50 Chance of them also having PTLS. In The Event that We wanted Children, We would Adopt. So, All in All, It is not always Easy living with PTLS, but I would never give it up for Anything, Not even a Cure!





Thanks for Reading The Christianville Spirit. PTLS makes me who I am, Wonderful and Unique.