The Christianville Spirit: (TCS Series) My PTLS Family

The Christianville Spirit
The Spirit that Inspires You
July 28, 2010- TCS # 209

Ok, Everyone it’s time for the 4th Installment of The Christianville Spirit Series, “A Day in the Life of Christian and PTLS”. For this installment, I’m going to tell you about an important element of my life, My PTLS Family. So, without further a due, this is The Christianville Spirit Series, “A Day in the Life of Christian and PTLS”. Ever since I was blessed with Potocki-Lupski Syndrome(back then, it was called a Duplication of Chromosome 17 or dup.17p11.2). My Mom and I didn’t really have any support for My Special Needs, we had to wait several years before anyone else was diagnosed or any other doctors picked it up. Until finally, someone was finally diagnosed. Today, after 19 Years from being diagnosed, thanks to better technology, there is finally a name, and a larger group of people to join The PTLS Union, I have a PTLS Family of just over than 30 People. Recently there have been a couple of people who refer to my PTLS Family as “Strangers”, but obviously they don’t understand who strong and special the bond of this Special Family is to Me. My PTLS Family may not be Blood Relatives but, in many ways they means more to me than some of my family. I may be Hope in their eyes, But, They are support to me through my eyes, because they are the true people that understand me and celebrate me. They don’t question why and why not I don’t do things because they accept me for who I am. In fact, next week I’m going to celebrate my birthday with a group of them and The Smith Family in Atlanta. I Thank them for being such an important part of my life. Because PTLS is a rare syndrome, It’s very important to have a such a close bond between each other. For those who I’ve already met, they are awesome people and I look forward to meeting the others.
All in all, My PTLS Family is a source of encouragement for me and I love them for it.



Thanks for reading The Christianville Spirit. Remember that sometimes, The closest people may not be blood. But, their family.

The Christianville Spirit:(TCS Series) My Love Life

The Christianville Spirit
The Spirit that Inspires You
July 21, 2010-TCS # 208

Ok, Everyone it’s time for the 3rd Installment of The Christianville Spirit Series, “A Day in the Life of Christian and PTLS”. For this Installment I’m going to tell you about My Crushes and My Girlfriends. So, without further a due this is The Christianville Spirit Series, “A Day in The Life of Christian and PTLS”. Now, I know there are people who think that Special Needs People don’t or won’t get to experience Love and Having Girlfriends but, boy are they wrong. In my life, I’ve had 2 Major Crushes and 2 Girlfriends(One of them, not official). The first girl I had a Crush on was way back in Elementary School when I was in the 4th Grade, her name was Lynee. I was in a class with her and played with her in the playground. Now, as I can remember I don’t think Lynee had Special Needs and around the time, I didn’t think I had any either. Anyway, I’d always like talk about her to My Brother, The Barsis, and The Herricks while all of us jumped in the trampoline. Every now and then, they would cheerfully shout “Lynee, Lynee” because I would always blush and smile when I heard her name. Several Years Later, in The 8th Grade I met a girl named Ali. Now, Ali had Special Needs, Down Syndrome to be exact and in the 8th Grade I had the biggest crush on her. I even made her a Christmas Card which I was too Nervous to Give to Her. A Couple Years Later, I saw her again when I was in Grade 10.5 (as My Best Friend, Steven and I would call it) and then she was my “unofficial” girlfriend. Which meant that we liked each other and acted like boyfriend/girlfriend but, her parents wouldn’t let her date until she was 15. When I was a Junior in High School, I met a girl named Madison. She was the girl that not many people liked and I liked her. People told me that she wasn’t a nice person and I tried to prove them wrong, until we broke up and I saw the light. Madison was the first girl that I went on actual dates with and I went to Homecoming with Her, She was the first girl I ever kissed and I kiss her many times. There was even one time that I kissed her in front of My Mom, Which gave her a Heart Attack. It was Hard to get over her only because she was very mean after the break up and I worked with her, I couldn’t get away from her. So, Quitting my job was the only way out. Boy, that thought to get any girl angry. After Dating Madison, I decided to write about “My Dream Girl” and what she was going to be like and I named her, Carol Holiday. Well, one day I decided to look up her name on Face book, I found someone with that same name and it turned out that she had the same Qualities, She lives up North, She worked with Special Needs Kids, Blonde Hair, Blue Eyes, and Same Physical Features. I had also written that Her dad’s name was going to be John and it actually was. So, She was Almost Everything I had listed but, she was much older than me, Married, and had kids. However, I was very happy when I met her. After I told her the story about what I wrote, she was amazed. As of Right Now, I’m very hopeful that I’ll find “My Dream Girl”. All in all, I know that Soulmate/Dream Girl is out there and I can’t wait to meet her.


Thanks for Reading The Christianville Spirit. This Piece of Inspiration comes to you from Eric on Boy Meets World, “Lose One Friend, Lose All Friends, Lose Yourself”

The Christianville Spirit:(TCS Series) My Interests

The Christianville Spirit
The Spirit that Inspires You
July 14, 2010- TCS # 207

Ok, Everyone It’s time for the 2nd Installment of The Christianville Spirit Series, “A Day In The Life of Christian and PTLS”. For this Installment, I’m going to tell you about the things I’m Interested in and why I love them. So, without further a due, This is The Christianville Spirit Series, “A Day In The Life of Christian and PTLS”. You See, as with every other person, I have the things that Interest me and things I love to do. The first thing is Geography. I have always loved Geography since I was a little kid. Everyone who has ever known me can tell those who haven’t met me that I get them anywhere. But, of course with my 6th sense, to “Stop and Smell The Roses” I’m going to give The Main Way to go and The Scenic Route. So, Most People that really know me know they have to specify which route they want. The Next Thing I’m interested in is something that a lot of people don’t know what it is, and that is Cyber traveling. You See, I use Google Maps’ Street View and put the little yellow figure that is me on a road somewhere and start “driving” to wherever I feel like going to. I love that I can see the country and the world without even leaving my living room. While Cyber traveling, I get to see one of the other things I’m interested in, Road Signs. Whoever travels with me knows that I’ll notice a change in Road Signs if I’ve been on the road before and I’ll tell you. What’s really amazing is that I have found websites about Road Signs that are mainly in The US. Now, Occasionally I’ll find a site about International Road Signs which really amazes My Mom when I show them to her. Other things I like to do is go to The Movies and Bowling. The kind of movies that I like to go to see are Comedies, Cartoons, and Romantic Comedies. I like Comedies because they make me laugh. I like Cartoons, like Shrek, Toy Story, and Other Disney Movies because I grew up with them. I like Romantic Comedies because they are sweet and they make you feel good. The Final Thing I like is Bowling. In fact, I like Bowling that I joined the Special Olympics Bowling last week and another reason I like it is because it’s fun. All in all, I have interests like everyone else even though they may be different.


Thanks for Reading The Christianville Spirit. Figure Out what you love to do and go do it.

The Christianville Spirit: (TCS Series) About Me

The Christianville Spirit
The Spirit that Inspires You
July 7, 2010- TCS # 206

Now, I know a lot of My Readers and Parents of PLTS Families wonder a lot about me; like what my daily life is like or what it feels like to have and deal with having PTLS. So, I decided that it would be awesome to tell you how I live and deal with PTLS. So, I’m going to have a series on it, I’m calling it “A day in the life of Christian and PTLS”. So, without further a due, this is The Christianville Spirit Series, “A Day in The Life of Christian and PTLS”. To start this series, I’m going to start with general things about me. First off, of course, I’m Christian and I was born in San Antonio, TX on August 11, 1987; right now, I’m 22 going on 23 Years Old and Yes, I still live at Home. Because of my reaction time, I probably won’t be Driving because I’m busy looking at Road Signs and My Reaction Time is very slow. Over the years, The foods that I eat have progressed a lot since I was a kid. You see, When I was a kid all I ate was Yogurt, Mac n’ Cheese, Grilled Cheese, and Spaghetti because I had a lot of issues with Textures and Appearances. Today though, I eat a lot more things than I did. But, I still have Texture Issues and I won’t eat things that look funny. My Eyes and Ears were very sensitive through the years. But, now their not as bad. The Sound of The Ocean Waves, People talking Loud, Loud Music, Trains, and Thunder really bothered my hearing. Speech has been an on-going issue, I took my time beginning to talk because I was too busy taking in everything about me. Because of my submucous cleft palate, I had to learn how to speak with the air going out my mouth, not my nose. Sometimes I tend to talk with my teeth together and I don’t make the words clear. So, I have to be reminded to speak clearly. But, I don’t have any problems with my vocabulary words; that many teachers have been impressed with since I started talking at 5. Just because I started talking later in my life, does not mean I wasn’t paying attention and once I started talking, I didn’t stop. My Mom says “He’s making up for lost time”. My Motor Skills have been a little different, My Mom says I have poor muscle tone but, I have strength. She also says I have always had problems with my fine motor skills. I’m very routine oriented and My teachers in school almost knew when I was off my routine because I couldn’t focus on what I needed to do. I have to know what to expect or I have a lot of Anxiety. All in all, All of this makes me the special person that I am.



Thanks for Reading The Christianville Spirit. Having Special Needs isn’t a bad thing, It’s just a different thing.