The Christianville Spirit
The Spirit that Keeps Learning with Hope and Resilience
March (Marzo) 14th, 2018-TCS # 586
Welcome Back, My Readers! I hope that You had an Excellent PTLS Awareness Day! PTLS Members and Friends, I want to Thank You very Much for Doing All that You did to Help Spread Awareness of Potocki-Lupski Syndrome. It touches My Heart so Much! You Guys wore Green, Literally All Over The World; A lot of You helped Raise Money for PTLS as well as The PTLS Foundation; PTLS Member, Stacey did a Bake Sale that She did Brilliantly; Several People had Birthday Fundraisers on Facebook including My Grandma Honey and Most Notably, Family Friend, Scott Lerew (Thanks a Bunch, Uncle Scott!); and, Of Course, PTLS Family Members, Friends, PTLS Relations, Teachers, and so on, gathered for Pictures of Themselves with PTLS Green and Facebook was a Sea of Green! It was Amazing, Folks! It is all Thanks to You My PTLS Family Members and Friends. Oddly, Thanks to The Very First Person who had PTLS (Wherever They are) because Potocki-Lupski Syndrome (Duplication 17p11.2) would not be here, If It weren’t for That Person. So, on to This Week’s Newsletter
So, I am sure that You saw that I mentioned about My Kidney Episode and PTLS, Well, I am close to Confirming It but, I am a bit Busy This Week because My PTLS “Brother”, Tyler is in Town as well as The Fact that It is a bit Hard to explain about it, which I need Time to explain it. So, I will do that Next Week. However though, I am not going to Leave You, High and Dry. So, I am going to Rerun a Newsletter that Explains How We got The Idea of The PTLS Green Shirts. FYI, My Favorite PTLS Green Shirt is The Hunter Green with The PTLS Key in Front, It is Very Simple! Anyway, Keep Spreading The Green for The Rest of March (Marzo) and The Rest of The Year!
This Newsletter was written on March (Marzo) 18th of 2015 (Refer to Newsletter 442)
So, My Readers, I have something really Exciting to Tell You about! You See, as I have mentioned before, It is PTLS Awareness Month and The Motto for it is “Be Seen, Wear Green” or “Be Seen, Wear Green for The Happy PTLS Gene”. So, This is The Background before I get to The Exciting Story and I promise you, it is worth reading this part before The Exciting Story. Anyway, Last Month, My Mom was trying to come up with Ideas about PTLS Awareness Month and How to Celebrate It. Well, My Mom thought that it would be a Good Idea to make shirts for Our “Be Seen, Wear Green” PTLS Awareness Campaign. So, PTLS Family Member, Natalie Hinkin asked My Mom, “Do We have any Shirts in Green?” My Mom said, “No, but that is a Good Idea”. Sure, enough Natalie created a Campaign on a site called Booster.com and started selling Shirts with The PTLS Key on It (Because that is the Logo of PTLS) for 2 weeks. We sold over 100 Shirts in 24 Hours (Not Kidding You!) and, 500 Shirts in Two Weeks. Well, on PTLS Awareness Day, PTLS Members all over The World posted Pictures of Themselves, Family Members, Friends, Teachers, The List goes on! Of them in Their Green PTLS “Key” Shirts. That Campaign is still going on, It is at booster.com/beseenweargreen3 (Editors Note: This Campaign Site is Closed), Check it Out, Buy a Shirt, and Help Us Raise Awareness about Potocki-Lupski Syndrome. For Those that have already bought shirts and supported us, I Thank You from The Bottom of My Heart! It is amazes me that So Many People are wearing Green for The PTLS Gene! Remember though, that it is not just March to celebrate PTLS, You can celebrate All Year as Well! So, Let’s Hear about that Exciting Story! I am sure you are Thinking, Get on with It! Okay, Okay, Fine. So, Yesterday, was Saint Patrick’s Day and My Mom and I decided to go out to Dinner with a Friend of Hers. We figured that we would also show off Our Green PTLS “Key” Shirts as well. Well, it just so happened that There was a Hollywood Premiere of The Movie, Home across The Street. Well, The People at Good Morning America did a Contest in which a Non-Profit could Win the Premiere in Their City and Money for Their Non-Profit. Well, a Non-Profit in Plano won and The Premiere was held here. So, My Mom and I figured that we would check it out on our way to Dinner, since Our Dinner-mate was in Traffic anyway. Well, My Mom being The Awesome Mom that She is, figured, “Hey! This is Good Opportunity to Pitch PTLS!” We were wearing our Green anyway. So, We stood and watched for a while before we decided to get up close to the Red Carpet. There were Stars there that I have seen Many Times on TV or Heard about from Radio but, have never seen in person. Among Them, Tony Romo (He walked by and No Knew who he was), Jake Pavelka (From The Bachelor, Took me a second to figure out who He was), Kellie Rasberry (From Kidd Kraddick in The Morning on KISS-FM. Used to Listen to Them Every Morning on the Way to School. But, Didn’t realize who She was), J-Si (from a Show called Dish Nation on FOX, I don’t watch that show), Of Course, I can not forget to Mention the Biggest Stars of The Movie, Rihanna (The Singer) and Jim Parsons (Sheldon from “The Big Bang Theory”). You should have heard The Screaming Girls when Rihanna walked by! Anyway, in between when Rihanna passed by and Jim Parsons was on His Way, My Mom figured that She would teach J-Si and Kellie Rasberry about PTLS. After Jim Parsons walked by, We talked more closely with J-Si about PTLS, He was really Nice to Me. He shook my hand, saying, “What’s Your Name” I told My Name and My Mom continued with Talking about PTLS. After People settled down, My Mom was looking around at Everyone and seeing who She could talk to about Me when I noticed a Camera Guy walk past with The Microphone saying, “News Fix” which is a Local News Program that is different than the others. I said, “Mom, That Guy is from ‘News Fix!‘“ Mom is probably “What? What did He say?” I don’t speak as Clearly since after My Braces, A Story for Another Time! I said, “News Fix, like Channel 9!” I think if I would have said, That’s The Guy from Channel 9, She would have got it quicker. She did talk to that guy though and She gave him her Card with The PTLS Information on It. Okay, I am Sorry to say but, I have The Coolest Mom in The World, aside from My Uncle Craig, The Coolest Uncle in The World. He probably would have gotten us ON The Red Capet, Uncle Craig is THAT Kind of Guy. Ohh, The Smith Family, I tell ya! Anyway, as We were leaving heading to Dinner (We stayed a bit too long!) My Mom told me “I was a Media Hog” in a clean way. So, To say that We had an Awesome Saint Patrick’s Day would be an Understatement. All in all, Our “Be Seen, Wear Green” Campaign is going strong and I Thank You All for That! Oh, and Happy early Birthday, Mom!
Thanks for Reading The Christianville Spirit. Keep on Supporting Our PTLS Green!
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