The Christianville Spirit
The Spirit that Keeps Learning with Hope and Resilience
August 29th, 2018-TCS # 604
Hola, My Readers! I am happy to be on My Regular Newsletter Writing Schedule! I missed you guys! So, There is Something that came to My Attention This Past Week that Made Me feel “Special”, and Not the Good “Special”. You See, in Having Special Needs, which One would think is Easier than being Typical, don’t have to worry as much about Life’s Worries, It is an Easy Life! Or, so We think anyway. Okay, Given having Special Needs, gets you some Bypasses and Help as well but with it, comes those Times. This Story is one of those Times. You See, In order to have the Help You need as well as Trying to be as Independent as possible, You have to get Services to help you. Services can be given via The Government or The State in which You live in. In Texas, That means It is given via The State of Texas. Basically, It’s getting The State, Medicaid, and A Coordinator Company to all agree in Giving You Services. It is really complicated! Basically, I have a Case Manager that I see every month and They basically check in to How I am doing. The Extras like Supportive Employment, In-Home Services, and so on, You have to request. Anyway, so Along with The Coordinator Company checking in, The State checks in to see How you are doing in terms of Your IQ, to see See if You need The Services or not. This only happens once every few years, The Last Time being in 2013. Now, It was not The Test itself that bothered me, It was that I was not prepared for It. Now, Truth be told, An IQ Test is not something You need to be prepared for, unlike School Testing, The SAT, or ACT Tests. But, A Psych Person told us to come in, and We thought it was only to Update Yearly Paperwork but, It turned out to be that They were going to Test My IQ, I was Tired and still recovering from Going to Sweden. So, The Person told My Mom leave the room to do The Test. I tried My Best, even with My Perfectionist Ways. Now, They is No Wrong or Right Way to do The Test, Just give it Your Best Shot! But, The Thing is, The Way in which You are treated when comes to IQ Testing as well Other Ways of treating People with Special Needs, tends to swing towards, (In a Child-Like Voice) You be Careful Now because This Person is Speecial! In Other Words, Asking something like “Can You do This?!; Match Shapes?; Numbers? (Frontwards, Backwards, and in Order); 2 Plus 2; Geography Questions (Nailed It!); Science Questions; and, Sometimes, Psych Questions (Luckily not This Time). If It were You, It would make you feel Less Than. Thank God that They changed The Name in which They call Someone with a Low Score, (Pardon The Language here) Mentally Retarded. Today, They use The Term “Intellectually Disabled”. Ya Know, to My Mine, that Sounds like a Machine or a Robot that is messed up a little bit. Not quite that It is Useless but, Quite that It needs a little Tune Up. Computer Nerds, On It! Another Theory is an Office Printer that You need to go to The Printer itself to press “Print” instead of on The Computer. If You do try Pressing Print on The Computer, The Printer say “Intellectually Disabled”. Now, In My Mind, One could read that as a Joke like “A Priest and Rabbi walk into Bar..” and Truth be told, It could be a Joke. But, To Me, It is not. I have known that I have Special Needs and I embrace It! PTLS makes me who I am. But, My Readers, It is NOT Who I am or What I am, if that makes sense. If Someone introduced me as “Hey Guys, This Christian, He has Special Needs, He has PTLS” versus “This is Christian, a Great Friend of Mine”, It makes me feel better. I am proud of Have Special Needs, but to Reminded of It, Is basically Putting a Label on The Office Printer saying It does not work when, It just takes getting up to Clicking “Print” on The Machine and Surprise! It works just Fine! Now, I may not excel in Certain Areas like Math, unless It is showed in a Better Context. I may not be up to The Social Level of People that are My Age. But, I do excel in Other Things, like Geography, History, and Politics. Not to Mention; Road Signs, Human Emotion, and Intuitiveness, to name a Few. I don’t need an IQ Test to tell me about that, because I already know about that. Heck, A Couple Years Ago, I was able to Fix My Computer after It had a Virus. All in all, PTLS makes Me Special, but I like to say that It makes me Unique.
Thanks for Reading The Christianville Spirit. Don’t Judge, Don’t Limit Us Incredible People!
2 comments:
Christian you Wow me with your beautiful spirit, your determination,your intelligence in writing this blog explaining how you feel. You are so right in your thoughts! My granddaughter has PTLS. She is 3 years old and so sweet and loving. You give me hope and positive vibes! Thank You!
I forgot to mention I am from Quebec, Canada and am a member of the PTLS site. I admire your mom for all the work she has done helping families understand the uniqueness of this genetic issue. It is a wonderful support group!
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