The Christianville Spirit: Friends and My Personalities

The Christianville Spirit

The Spirit that Knows Love

July 31st, 2019-TCS # 649

Happy August, My Readers! Yes, Folks! It is that time of Year! Not only is it My Birthday next week, My 32nd actually. But, Something that comes with being an August Baby. It is Back to School Time! For Those in The US, We start a New Grade in August, where as in places like Australia, A New Grade starts in January or somewhere near that. Anyway, Funny Thing about being born in August, You learn that School always starts either before, on, or after My Birthday. Now, I Realize that I am writing This Newsletter on July 31st but, It is August already in Most Parts of The World, so to You, I wish You a Happy August! So, On to This Week’s Newsletter! So, In My Years of Being an Adult, You start to Realize Things. Some Things You want to know about in Yourself, Your Friends, Your Family and, so on. And, Some of course, that You did not realize until Now that change your view on Said Thing or Said Person. I would like to say that Everything is Rose-colored Glasses but, Not Everything. You See, I have discovered about Myself and My Personalities. Now, don’t get me wrong, I won’t hate Myself or My Personalities, but They frustrate me because They often don’t mix Very Well. I know that Everyone has different Personalities that often conflict. Some People have so Many Personalities that They don’t even know what to deal with. My Mom and I’s Friend jokes about the feeling of having at least 14 “Personalities” (Not that she does) and Get a good laugh about it. Me, of course, I have 3 “Personalities” that want to get involved in Everything no matter how mundane it is. Now, for Most People, They have a Personality for What I call, Your Personal (Life, Love, and Family) and Professional Life (meaning Work and/or Something that You are Passionate about). Because My Personal Life and Professional Life often mix, I have the Three. My Three Personalities of course are Romanticism, Special Needs Logic, and Reality. Often Times, I feel that Romanticism is The One that likes to Rule over but, Is often the one that gets shot down a bit because The Others feel that They are More Important. Oh! The Life of a PTLSer, Let me tell ya! 

So, Romanticism, What is that? It is basically My Heart, The Stuff I truly believe in, The Stuff that I dream about and in some odd way, They come True. It is My Future Life that I picture where Everything in My World, My Family, PTLS Realm, and My Love Life are All Meshing Together in Peace. But, It is also Seeing The Good in Everyone and Everything, and Only The Joys and Happiness in Life. Which is The Thing that can get me in Trouble. When My Romanticism says Things that are not True, I have a Hard Time believing that It is not True.

Funny Thing, I could probably mention this to My Friend, Deb; My PTLSers Friends; and, a PTLS Family Member and They would totally get it. Basically, It is Everything that a Romantic Comedy or Hallmark Christmas Movie is made out of. Not Only A Life where You Fall in Love, Stay Together your Whole Life never letting go of Each Other, Cuddle all The Time, Hold Each Other when You are Upset, Laying underneath The Really Pretty Looking Christmas Tree, and Of Course, have Massive Amounts of Christmas in Your House. To Me, that is What I picture My Future Life of The Woman of My Dreams, Bridgett to be like. Come to Think of It, The Whole Idea of Bridgett probably came through because My Romanticism. I was talking to My PTLS Friend about it, Laughing at Myself as I was Describing it, saying that Romanticism is like a Log Cabin all Beautiful and Pretty and To put it nicely, Christmas came in, got Sick, and Threw up Everywhere in Juust the Right Places. My Special Needs Logic would say, “Yeah, Let’s Do that! It can be done in One Day!” and Reality says that It can not be Done in One Day, It would take Several Days! Either that, or A lot of Patience. Something that Us PTLSers struggle with Sometimes. The Easiest Way to Talk about Romanticism, would be Where My Rosy-Colored Glasses are. Honestly, in The Most Humble Way, I think that aspect of My Personality is probably Why People Love Me so much! And, I am Very Honoured!

So, Then Comes My Special Needs Logic. My Special Needs Logic is basically The Belief that Anything can Happen that Romanticism wants, but With Some (keyword here, Some) Work, It can happen. You can have a Christmas Romanticism House but, You have to remember that It is not a “Let’s Decorate on December 1st and It’s all Done”, Although with Some Extra Patience Yes, It could be Done. Most Often when It comes to Which of My Personalities that I have a Hard Time telling the difference between is My Romanticism and My Special Needs Logic. For Example, Growing Up with My Childhood Friends, We had a Close Relationship, We hung out together and Did Pretty much Everything together. So, My Romanticism thought that We would always be Friends and Do Things together in Life. My Special Needs Logic tells me that It is still Possible to resume Doing Things Together I tried contacting them, which I have. But, Reality, at least at the Moment, says No. My Special Needs Logic has a Hard Time understanding it. Now, In My Mind, My Special Needs Logic sounds like that of a Child, “I Think I Can!”. But, Really, It is the Personality that has to be The One to balance Reality and Romanticism, Something is Hard for Me to Understand Some things that happen in Life because of My Special Needs Logic and Romanticism not balancing.

And, Finally, There is The Reality part. People in Romantic Comedies would call it, being a Realist. Now, Baring in Mind, Yes, No Matter how many Personalities that A Person has, should always have a “Realist” Section of It.

Reality is The Point in which, You have to Put Your Dreams into Reality. Which in all Honestly, is rather Scary because Reality can be The One to Mess it up and turn it in Something that You don’t recognize. Like, This Dream, Whatever It is, is not what I wanted, Not what I pictured. Reality can be Two Things, Very Confusing in both! It can either be The Best Thing in The World, Blessings all around! and, Of Course, Reality can become warped, in which Pardon My Language but, Reality Sucks sometimes! Perhaps, The Dreams I had with My Childhood Friends, I mentioned Earlier can become Reality. Maybe not at this Moment in Time but, Talk to It, in say 3 to 5 Years and Perhaps, Things will be flipped back to where We started. All in all, as a PTLSer, A Person with Special Needs, It is Very Hard to understand and accept the differences between All 3 Personalities.

Thanks for Reading The Christianville Spirit. In This Technical World We Live In, Place Value on Friendships.

The Christianville Spirit: Wishing on a Vacation

The Christianville Spirit

The Spirit that Knows Love

July 24th, 2019-TCS # 648

Wah’ Gwaan, My Readers! I have used This Greeting before. I feel that This Greeting from Jamaica in The Most Unique out of The Greetings that I have used. Except, Maybe Ćiao from Slovakia. But, This Greeting means What’s going on or What’s Up in Jamaican Patois. It is pronounced “Wa-Goo-Ahn”. Jamaican Patois or Jamaican Creole basically sounds like Slang Words and English Words, mashed together. You learn something new Everyday! My Readers, I would be Lying if I did not say that I Wish I was Swaying on The Beach! Watching The Blue-as-Blue-can-get Water and Listening to The Water Rush, while sitting (or Swaying) under a Palm Tree. That is The Life! Why am I Saying This, You ask?! You are Blessed in Your life, Christian?! You need More?! Okay. Well, I am both blessed in My Professional Life (In The PTLS Realm) what with All the Wonderful Families I call friends and What Not. As well, as My Personal Life. Got a Brilliant Mom! Not Everyone can say That! and, of Course, I have a Brilliant Brother as well. Shout to My Brother, Michael! But, At The Same Time, You know how there are Times, Probably more than You and I can count, where Your Friends are doing something, or are Somewhere that You wish You were. This Week, that is Me. Two of My Friends and One of My Childhood Friends are off on The Beach. I kind of wish I was there with Them. or Better yet, Both Friends at The Same Beach and We are Beachin’ It Together. Now, that would be Awesome! The Same could be said of People whose Friends are all getting Married, Having Grandchildren, and so on. Sign Me Up for The Married, not for The Grandchildren, Thanks! With Everyone going on Vacation, There are Some of Us that either don’t want to go on Vacation. Wait a Minute, Seriously, Who could Resist Vacation?! It is a Scary World out There! or Perhaps, Their Company only gives them a Little bit of Vacation, like 2 Weeks only. I digress. Or Most Commonly They can not afford to go on Vacation, or at least Paid Vacation anyway. And, Yes, Believe it or not, There are Parts of The World (Many Parts) that allow for Paid Vacation. Getting into Triggering Politics..ahem (Clearing Throat). Okay, Folks! Let’s Focus on The Fascinating Part of Different Countries, not necessarily The Triggering. So, For Those of You, who can not go on Vacation, I am going to do a Rerun, not about Vacation but, Maybe Countries to Dream about. Maybe as Modern People would say “Something to live Vicariously Though”. So, Have a Happy Trip in The Information about Different Counties. Enjoy and Sway Away! 

This Newsletter was written on July 22nd of 2015 (Refer to Newsletter 458)

Bonjour, My Readers! I would have to say that “Bonjour” is One of My Favorite International Greetings! Bonjour, Hello in French, It just seems to flow when You say it. Anyway, On to This Week’s Newsletter! So, As You know, I Love Geography, Road Signs, and Travel, but You Know, what also fascinates me? Stats. As in Statistics. No, I don’t mean Statistics about Sports like Baseball or Football, believe me, When I handed them out when I worked at The Frisco Roughriders half of The people did not read The Baseball Statistics that We had to put in Programs we passed out. I am interested in International Stats as well as Stats about My Own Country. You See, Other than My Own Research and Curiosities about Different Parts of The World, I check This Site on Tumblr every day called “Maps on The Web” (www.mapsontheweb.tumblr.com) I was curious about Stereotype Maps and Somehow, I found Maps on The Web. It shows me Maps of All Kinds, Stereotype Maps; Income Maps of The World and/or The US; A Map of Europe showing The Nation’s official name in their Native Language, like Did You know that The UK (also called “United Kingdom” or “Great Britain”, depending on where You are from) is actually called “The United Kingdom of Great Britain and Northern Ireland”? Hmm, That would explain the Various Names of Calling It. Sort of like, The Netherlands which has an AD (Authoritative Division) that is North Holland and South Holland. So, The Netherlands is called both “Holland” (referring to State of North Holland and Country, or both). Yeah, Europe is VERY Complicated in It’s Names and How Things work. It probably sounds like The Most Amazing Part of The World, Sorry but, that is My Own Bias. One Map showed how the International Dateline goes through The South Pacific with all of it’s Island including Fuji, Guam, American Samoa, and French Polynesia, among Many Others. I saw One recently that showed The Average Age in which Men and Women get Married in Several States, in Texas It is 26.9 for Women and Men is 28. Other States, it is Older or Younger. One Stat about a Country really fascinates me. You See, My Mom’s Friend has been going to Costa Rica for Business Trips and Costa Rica, although I know that it exists in The World, It has not been on My Radar of Places that I am Interested in. After She got back, I started researching on My Own about Costa Rica and This is where it gets fascinating. So, knowing that Costa Rica is Pretty Small Country compared to say, France, Sweden, or Norway, is The Most Stable, Most Green, Most Progressive Country in ALL of Central America. Now, Central America is not a Very Big Area, You have Mexico, Belize, El Salvador, Honduras (which is The Murder Capitol of The World, By The Way), Nicaragua, Costa Rica, and finally Panama (as in, The Home of The “Panama Canal”). I wonder though, How is that possible that Costa Rica is The Most Stable of Those Countries? Many Reasons I am sure, but One is the Love of The Word, “Pura Vida” (pronounced Pure-uh, Vee-dah). It is Costa Rican Spanish for “Pure Life”. They use it so much it has Many Meanings, among them; Hi, How are You, Great! or Okay, and Thank You. I guess, The Tone of Your Voice matters a lot! One List of Stats that Fascinate me The Most is The Happiest Countries List and Peaceful Countries List. It always makes me wonder, With Respect to Said Countries, Why is it Countries in The North like Canada, Norway, Sweden, Denmark, or Switzerland are The Happiest and Peaceful Nations in The World? The United States in always in the Teens or 20’s on that List. Likely because of Their Way of Life, in Sweden for example, You can Camp anywhere in The Woods you want to, as long as You respect Private Property and People’s Privacy. Also, In Europe, They Live to Work and They have at least a Month of Paid Vacation Days. In The US, Don’t Get Me Wrong, Guys! I Love My Country, The United States; But, Here we Work to Live and Vacation Days are as Low as Two Weeks if not Less. That would Explain Our Happiness Rating Here! In Happy Countries, They trust Their Government, which many of them are Monarchies, We on The other Hand, Don’t. So, My Last Question for Those that are Curious, Who does all these Stats? Tons of Researchers and Interviewers from Organizations like Forbes, CNN Money, Pew Research Center, and Of Course, The CIA World Fact Book. The CIA World Fact Book is the one who likely knows all of The Stats and Keeps Track of Them. All in all, I could go on and on about All The Stats and Facts I learn but, That would be VERY Long! We live in a Fascinating World filled with Facts, both Good (like World Peace and Happiness) and Bad (Who did What War), You just have to Open Your Mind and Learn about it, without too much American Bias. By The Way, Why do We call Ourselves “America” or “American”? Because We are called “The United States of America” which is part of “The Americas”.

Thanks for Reading The Christianville Spirit. Rock On with Your Stats! 

The Christianville Spirit: Words that You Call People Rerun

The Christianville Spirit

The Spirit that Knows Love

July 17th, 2019-TCS # 647

I have PTLS and I am Proud, My Readers! Woah! This one is another Greeting of Mine that really means a lot! I have PTLS, ahem...(Clearing Throat) I am PTLS and I am Proud. Literally! As My Lil’ PTLS Sis’, McKenna would say! Yes, I realize that Yeah, I am sure that There are Parts of PTLS or Potocki-Lupski Syndrome that We PTLSers don’t like such as Anxiety or Easily Being taken advantaged of, but There is Something that All of Us PTLSers would not take away, Our PTLSers. It seems like Every Conference, Us PTLSers discuss things like Typical Adults do, but at The Same Time, We do talk about things in the PTLS Realm. A Couple Conferences ago in 2015, It was about Many Things including The Word, “Disability”, The Word “Mentally Retarded”. My Apologizes for that without a Language Warning! I should have mentioned at The Time that We were breaking down the Words like “Disability” Dis and Ability. You have the Ability to do something until You put the Dis before It. Last Conference in 2017, It was The First Time that I had met My (now) Lil’ PTLS Sis’, McKenna. I wrote The Following about Her in My Newsletter after I met Her. (Quoting Myself from 2017, Refer to The “PTLS Conference 2017” Newsletter, if You have not read it)  “This Day, We had McKenna join us in Manning The Table. I will Tell You, McKenna is like a Mini-Me, not in Looks Wise, but The Things that She says. She only got The Diagnosis a Year and a half ago, and She embraces it like She knew She had it Her Whole Life and Truth be told, She did. As She will tell you, “Just treat me like a Normal Person” (Boy, that sounds like Me Because I say that all the Time) and That She was Happy when She was told that She had PTLS, like It was The Biggest Relief. Yes! That is what I Like to Say! By The Way, McKenna also confirms that Yes, Us PTLSers get Very Overwhelmed if Their Family takes them to Disney World. YES!! We All agreed to That One!” So, It seems fitting to Mention about All of Us PTLSers, Tyler, Stacy, McKenna, Allison, and Madison all agreed on. We all asked each other if There was Cure (And, We all know that being The Future, There eventually will be). We all agreed that although There maybe Some Things in PTLS that We may or may not like, We all would NOT Take The Cure. We agreed though, If It helped with Things a little bit (Assuming that There are No Side Effects. Which We knew that There would be) If There was a Side Effect, NO We would not take it. But, If It helped us, without The Side Effect then, Our Answer was Maybe. In this Conference, After Meeting Madison, who at First all of us did not think that We would click so well, We all did. Thinking about it, Madison, is as I told both her and McKenna, She is sort of like an “Adult McKenna” with the Same Embracing of PTLS that McKenna had as well as The Same Thought Mentality as McKenna. As I was saying, It makes me (Well, Us!) proud to say that We have, We are PTLS, It is makes us Very Proud.

So, With that Said, I am going to Rerun a Newsletter about Words that are used to Call People with Special Needs, Some are Okay to use, Others are not. This Newsletter will teach you about The Words to Say! I present to You, “Words that You call People”! Enjoy!

This Newsletter was originally written on July 15th of 2015 (Refer to Newsletter 457)

Howdy, My Readers! Thought I would do different greetings every now and then. “Howdy”, by the way, said better as “Howdy Y’all”, is What we say in Texas to say hello. Y’all, by the way is Texas Short-Hand for You All. Anyway, on to This Week’s Newsletter! So, Among the Many Things that us Young Adult PTLSers talked about at The PTLS Conference was The Meaning of Different Words that People used to refer to those with Special Needs. Also, How do we feel about “having Special Needs”? Well, The Truth is that I am aware that I have Special Needs, I embrace the Fact that I have Potocki-Lupski Syndrome, but at The Same Time, It is NOT Me. Not in the Way of Denial but, In a Way, that I personally don’t see that I have Special Needs because I am just Me, Christian. It might also help to the fact that I have had Potocki-Lupski Syndrome or Duplication 17p11.2 for My Whole Life, so really I don’t know any different. So, About The Words to refer to One with Special Needs, There are 4 Terms to use. A Disability, Handicap, Mentally Retarded or The R-Word of All Variations, and Someone with Special Needs. I, as well the Young PTLS Adults would prefer The Last One. Another One is that People think that PTLS is a Disease and I can assure you that It is Not. PTLS just happens, No Other Way to Explain It, It just happens. I see it more like it is a Serendipitous Accident, in other words, it is part of Your Destiny somehow. Anyway, Let’s Examine these Words. Now, I know that Words are Words but Many of These Words have Meanings. First Word is Disability. Disability, as My Young PTLS Adult Friend from The Conference says and The Word, Dis means, Anti or Against Something. In Other Words, You can not do XYZ. Ability, however means that You can do something. So, to refer to Me as Disabled means that I can’t do all the Things I want to do in Life and That is NOT True! Now, to be fair, There are People who are Truly “Disabled”, It is harder to do things but, They are Strong Enough to try their Hardest at it. The Next Word is Handicapped, Because I am able to Walk and Function as Typical as I can, that does not apply to Me. Respectfully, There are People that are Handicapped, even those that Do not have Special Needs. The Best Thing that You can do is ask if They need Help, if They do then, Help them and Mission Accomplished, They will be Grateful to You. If Not, then that is Okay too. Now, Here comes a Word that I do not like to Say Often, nor do I like to be called. Now, This Word comes from The Fact that People like to Compare Kids that have Special Needs versus Those that Don’t and Sometimes, It turns Ugly. We refer to it as The R-Word, Retard (Sorry Kids!). Now, The Word, “Retard” is actually a Cooking Term. You Know, when You are cooking something and The Fire from The Pan gets too High, You have to retard it. This is The Pleasant Way that I see that word’s use. However, The Government at one time used the Word “Mentally Retarded” or “Mental Retardation” to mean Someone with Special Needs, doesn’t sound too bad, right? After Rosa’s Law, It is now “Intellectual Disability”. Now, You drop The Word “Mentally” off That Phrase and that is when It is meant for Harm toward those with Special Needs. People say it in a Funny or Stupid Way, like “Ohh, That’s so Retarded” or “Your So Retarded” (pointing at Whomever did something Stupid, not meant toward Someone with Special Needs). I had a Friend that said that a lot and It annoyed me each time He said it because Said Person had Special Needs! Luckily though, There is a Campaign out there called “Spread The Word to End The Word” (STW, I call it for short) It is at www.r-word.org, Sign the Petition and Stop using The R-Word! And, finally, The Phrase that I would rather be referred to as “Someone with Special Needs” because that is Me, “Someone with Special Needs”, better yet a “A Person with Special Needs” because after all, I am a Person, just like You. A bonus with This Phrase is that it applies across The Board and does not in any way Offend anyone or Make Someone feel Different. So, What about The Other Words, Can I use them too? I would prefer that You not, but If You have to, Change The Words around so They sound better. Disability, How about Differently Abled (regardless whether They are actually “Disabled” or Not). Handicapped, That One can not be changed much because it applies to those are a Truly Handicapped, but Don’t use it on Me because I don’t see myself as “Handicapped”! Mentally Retarded, All Versions of The Word should be Taken Away except for The Original Meaning, which is for Cooking. and, Someone, Person, or People with Special Needs is probably the Best Word to use. All in all, The Point here is that I am just like You. Yes, I may need a bit of Help in certain areas and Treated Kindly, but I deserve to be treated as if I was like Everyone Else. No Comparing, No Name Calling, and PTLS is NOT a Disease, It is Only a Label!

Thanks for Reading The Christianville Spirit. We are all part of The World, We should Treat each other as Human Beings! 

The Christianville Spirit: Great Time with Friends

The Christianville Spirit

The Spirit that Knows Love

July 10th, 2019- TCS # 646

I Miss My Friends, My Readers! Wow! a Deep and Thoughtful Greeting! But, It is True, I miss My Friends! By Friends, in this Case, I mean My fellow PTLSers that I had a Really Great Time with! You See, I do have a lot of Friends both in the PTLS Realm that I talk to as well as Friends in My Personal or Local Realm, like Childhood Friends, Neighbours, and Friends that I have met via either My Mom or My Brother! Thanks Mom and Brother! But, In case, The Friends I miss are those who I talk to but not that often as well The Great Friends and New Ones that I met at The Conference. My PTLS “Sister”, Dani for example, I used to talk to Her a lot, like Everyday at One Point but, It is Hard to transfer Talking to Someone either Online or In Person, from The Time that You had Texting, Emailing, and Camming (Her word for “Webcamming”, i.e Skype, Facebook, or FaceTime) to Real Life Day-to-Day Life and Routine. So, We don’t talk as often. In The Case, that I am talking about. My Friends that I met at The Conference a little more than a Week ago. All of Us were quite Content Hanging out on The Couches nearby The Conference, Walking around The Hotel, or In One Case, Hanging out in Each Other’s Hotel Room, just sitting on The Couches talking and laughing while Glancing at The TV playing every once and while. It was Nice and Quiet for all of us. To Think of All the Fun that We had, I thought it was not a Big Deal wanting to Hang out together in The Hotel Room. But, I did know that in The Context of What Sheldon of The Big Bang Theory calls “Social Convention”, so Wanting to go with a Group of PTLSers to Another PTLSers’ Hotel Room to hangout was in “Social Convention” a Very Typical Young Adult Behavior kind of Thing to do. I will say though that Looking Back on it, Just spending The Evening hanging in One of The PTLSers Hotel Room, Just Us, not a lot of Activity. I think that was The Best Highlights of The Conference that We had and I’m sure that Our Parents were Extremely Proud! Come to Think of It, The Time with Tyler and I watching The Fireworks from Our Hotel Balcony, that would be a Highlight too. I can’t tell you how Nice it is to have just Small Group of Friends (be it PTLS Friends or Personal Friends) just hang out, not a lot of Activity. We don’t need a Party with a Bunch of People because like having too Many conversations going on that You want to listen to. We don’t need a lot of Activity going on around us either because It would distract us and then, We would lose our Train of Thought and Have a Hard Time getting back to What we were Talking about because of Short-Term Memory which We PTLSers tend to have a Problem with.

 We would Prefer a Small Party with just a Small Group of People. I think that I have always been that Way, even when I was little where I just wanted a Small Group of People.

Now, the Thing is, even with FaceTime, Skype, Facebook, Whatever Avenue that You choose in “Camming” or just Texting. It is still not The Same as saying, “Let’s go Hang Out at XYZ Place!” ;“Let’s all go Walk somewhere”; or “Let’s all go to So-and-So’s Hotel Room and Hang Out”. Honestly, that is what I miss the Most. Seeing each other in Person and just Hanging out. It often takes Work for us to get out and about because We are HomeBodies and We don’t want to get out into The Overstimulation that happens in The World. All in all, When We get finally together, It is like We just saw Each Other Yesterday!

Thanks for Reading The Christianville Spirit. Embrace PTLS and Embrace Your Friends.

The Christianville Spirit: PTLS in Dallas

The Christianville Spirit

The Spirit that Knows Love

July 3rd, 2019-TCS # 645

Happy Independence Day (or Fourth of July), My Readers! Well, My Readers in The United States, “The USA”, “America”, or whatever you like to call it; Happy 4th of July! For those outside The United States, July 4 is just another day. You See, every country in our lovely World of 246 Countries, we have our own little “Special days” in our own countries. So, on to This Week’s Newsletter! All I can think of at The Moment is Wow! Just Simply, Wow! This past Week I went on a “Official PTLS Business” Trip to Houston, The PTLS Capitol, for The PTLS Conference. (Record Scratching Sound) Actually, This Year, We swung it an Entirely Different Direction! This Year, We actually had Our Conference in a Different City, My Home Region of Dallas-Fort Worth! Yes! We decided that This Time’s Conference was going to be Different. PTLS Family Members, We have studied, said that if They are going to be coming a Long Way to Texas, We should give them More Texas and The Dallas-Fort Worth Area is definitely Texas! No Offense, of course to The PTLS Capitol of Houston. Yes, It is that time again for The PTLS Conference. This Conference, I have to say, was a PTLS Conference that was unlike any other that We have done. 

Now, Okay, to Date, We have had 5 Conferences so far held in 2009, 2012, 2015, 2017, and This Year, respectively. This Conference was different in many different ways. The First being that This was The Fifth Conference in Total but, First Conference that We had in a Different City. Of Course, Like The Last Conference, My Mom planned it all. Yes, She planned it along with Help by The PTLS Foundation and The Hotel’s Event Planners. Also, There was a just a little less People there this time around so It is  Less Overwhelming, But My Mom was able to plan time for families to have Alone sessions with some of the Doctors, And More time to ask questions. It was a lot easier to Plan This Conference because Our Hotel was only about 45 Minutes from Our House. Funny Thing, When We came up with The Idea, I first thought of Downtown Fort Worth until I remembered that It would be Difficult for People to get there. Dallas-Fort Worth is a Big Metroplex! You would have to Rent a Car to get to Downtown Fort Worth. Next Idea was Arlington. Entertainment District of Arlington, a little too much stuff! Nope. What about Grapevine, literally a stone’s throw from The Major Airport?! Beautiful and Historical Downtown Area; The Mall, Grapevine Mills with an Aquarium and Legoland; A Huge Hotel, The Gaylord Texan; and, Of Course, The Airport within a 5 Minutes Distance. That is Perfect! Grapevine It is! So, Last Tuesday, My Mom and I drove out to Grapevine, only a 45 Minute Drive and We were at The Site of The Conference. It was The Weirdest Experience! Compared to Driving 5 Hours south of Houston. So, Tuesday, We welcomed Our PTLS Family Member Vivian and Of Course, can’t forget My Lil’ PTLS Sis, McKenna! I was Very Happy to see her again! We had a Small Party on Our rather Large Room which had Two Bedrooms, hanging out with Them. The Hotel was gracious enough to give us a Little Upgrade! We were being A lot of People to Their Hotel anyway. Later, My Brother flew in from Denver to join in The Conference Fun! Wednesday, We did some Final Conference Prep. like Getting The Welcome Bags Ready and Making Sure Everything was running Smoothly. Of Course, Vivian and McKenna could not come to Dallas without Me showing them, The Huge Hotel, The Gaylord Texan! They were Very Impressed by It1 They were actually amazed by How Big The Place was. We had a Big Lunch there after Exploring Everything, We ate at The Sports Bar/Restaurant with Huge TVs! On Thursday, It was going to be a Busy Day! Greet People coming in, which went differently because of the Closeness to The Airport as well as Prepare for Our Evening Reception which was Really Awesome. My Mom set up that We would have a Few Speakers after We literally had 4 Stations worth of Food to Eat. Yes, You heard me! 4. Stations Worth of Food! Salad Station, Tex-Mex Station, Pasta Station, and of Course, a Macaroni and Cheese Station! I think The Macaroni and Cheese Station was The Hit for Everyone. Plus desserts!!! Now, We did have Dr. Lupski on Video to speak and Of Course, The Sibling Talks with McKenna’s Sister, Samantha and Yes, Even My Brother, Michael! Now, I did not see it but, What I did see that My Brother did, make me Extremely Proud of Him. My Brother answered PTLS Family Member’s Questions, Hung out with Them, Talked to Them, Interacting with Them, and Best of Treated them as He would treat me! Boy, was I a Proud Brother! Now, Of Course, Throughout The Conference I had a lot of Fun of My Own. Most of The Conference Days of Friday and Saturday, I got to hang out with My Fellow PTLS Young Adults and Teens, including My Lil’ PTLS Sis’, McKenna; PTLS Brother, Tyler; Stacy, who I have known since The Beginning (as in it, Stacy was The First Person with PTLS that I met); and, then Alyson and, a Two New PTLSers that I have never, PTLSer Madison and PTLSer Daniel. Between all of Us, You would swear that We were Near-Typical Adults acting somewhat typical for Our Age. We did have a Several Great Discussion between McKenna, Alyson, Tyler, Stacy, and Madison that was a Rather Deep. Including Most Annoying Thing about PTLS, Texture Triggers, What They thought about PTLS, Our Interests, and Of Course, Talking if There are a Cure for PTLS, would either of us take it. The Question I asked was that If There was a Cure for PTLS (Because In The Future, eventually There will be), would either of us take it. All of Us said No!!! We agreed that If it helped a little bit, like with Anxiety, then Maybe but, If it came with Side Effects (which a lot of Medicines do!) then, We all said Heck No!!! On Friday Night, The PTLS Foundation Board and The Doctors had Dinner together and Some of Us PTLSers ate Together at The Restaurant at The Hotel.

After We had all of Pictures taken on Saturday Morning, which I thought We were going to do on Friday Night but, I digress, McKenna was not having it afterwords. Rightfully so though, because a Loud-Crying Baby was Next to Her while We were doing the Pictures. PTLSers don’t deal with Distress or Crying Babies very well! Anyway, so McKenna spent a lot of The Day relaxing in Her Room because She had enough of all the Activity for The Day. Later that Evening, after Madison left to Fly Home, all of Us were Sad about Her leaving because She was The Entertainment of Our Group. But, After We went to Dinner on Saturday Night, I knew that McKenna had missed out on a lot but, I knew that at the Same Time, She wanted to hang out with Me, Alyson, and Tyler. So, We asked if It was Okay before hand and Me, Alyson, and Tyler went up to McKenna’s Hotel Room and hung out with Her. Again, It was not that Big of a Deal to Me but, by what Sheldon from The Big Bang Theory referred to as “Social Convention” Context, It actually was a Big Deal. Very Typical Young Adult behavior. We actually had a Good Time hanging out up with McKenna and I’m pretty sure that McKenna herself enjoyed it as well. After We were Done hanging out with McKenna, Tyler and I were about to Call it a Night when I called My Mom and asked her where She was, and She told me that There were Fireworks happening in the distance, so We both rushed up to Our Room to sit on The Balcony to watch The Fireworks. After that, Tyler and I hung out for a little while longer and then, Tyler had to go back to His Room. On Sunday, We had Breakfast one last time and Hung out with Alyson and McKenna because Tyler had left already. Vivian and McKenna weren’t leaving until The Evening. So, We stayed and had Lunch with them. and, Then We all said Our “Until Thens” and then, We headed Home. All in all though, It was Great, Brilliant Conference! I would totally have it in Grapevine again! and, I am glad that I have and made such Great Friends!

Thanks for Reading The Christianville Spirit. Why try to fix a PTLSer, when We are Happy with Our Life!